Since June 23rd, 2014

Tuesday, April 26, 2016

More and more appointments

  • Appointment with Dr. MM (and Dr. T) and blood work at Siteman South County
Dr. MM confirmed that we should schedule a colonoscopy during this chemo break and more specifically, before my surgery. So. Next week.  He said that for the first year follow-up, we aren't really looking for new polyps or tumors in my colon, but more likely, something that was there last year but too small to be detected at that time.

I was scheduled to meet with Dr. T too but instead of waiting around for that appointment, they communicated to me that I didn't need to see him again until after my surgery. I suppose that's okay. I did have a few questions but I know that there really won't be any answers until after my surgery.

My blood work results are in and my CEA came back at 3.9 (the highest it's ever been). However, it turns out that the CEA testing method has recently been updated and this is the result from that new method that has a "normal" range of 0-5. For the next 6 months, both methods are going to be used. The result from the old method is 1.8 and that method has a normal range of 0-2.5. So it would seem that there really is no change from last month's result of 1.9 (old method). #science


Monday, April 25, 2016

Monday, April 18, 2016

Shelfie

  • Appointment with a Siteman Counseling Center psychologist at West County
It's been months since I've met with a professional to talk through things. The last person I met with felt like I graduated and had set me free. And maybe that helped me to feel strong for awhile, that someone with initials after her name believed that I was managing my emotions in a healthy way. Fast-forward to live action though and right now I'm just not so sure that I should be trying to manage them on my own.

While my heart is full of joy and laughter ("togetherness, well that's all I'm after"), I also have had some heavier moments of sadness and fear and anger. These moments that have felt uncontainable have led to tears at work and fighting with friends about silly things and lying awake at all hours. And while I need to be fair to myself and allow myself to feel all emotions, I also could use some help wrangling them in.

Today we talked about acknowledging all emotions as they occur, but being able to set those heavy ones aside on a shelf for further examination at a "better" time. Even setting a time every day when I might write about those emotions so that my brain knows that at say 8, for example, there will be some time to focus on whatever is on the shelf that day. We talked about how writing can help your mind think in a more linear, organized fashion. First A then B then C. Instead of a wandering brain that often has no order at all. It sounds good and it will most likely be written words never shared with another person, but at least they won't be left on a shelf to get heavier... and then come crashing down.

My high school soccer coach used to encourage me to not wear my heart on my sleeve** so I think it's safe to say that I've always been an emotional person. He tried really hard to get me to believe in myself. A favorite memory is from the year-end banquet at the end of my first season, Coach had prepared a list of his favorite quotes from the season, some from talks after key wins or tough losses... and one quote that was just three little words... "Come on Bernie!" It was the one thing that he had said the most that season from the sidelines. Yours truly was the target and it was motivation shall we say to get myself into the game and to quit monkey-butting around. (He was very quotable.) He saw what I didn't see in myself and that memory makes me smile and want to go run some hill sprints.


**A quick on-line search reveals this definition:

"Wearing one's heart on your sleeve" is not something that you want to do. This idiom means that a person is overly sensitive and easily hurt by minuscule things. Or, it means that the person has no control of emotions and shows or acts on his/her feelings too readily. When we have some emotional maturity, we can discern how and when showing our feelings is appropriate. 

Expressing appropriate emotional responses takes practice and knowing what one really feels before one acts. Don't force expressing your feelings but learn to recognize what you are feeling. Then you can choose how, or if, you wish to express them. Not on your sleeve, but from your brain.

Sunday, April 10, 2016

Friends

Cancer makes it easy to feel alone and scared, but good friends won't stand for that!






Wednesday, April 6, 2016

Book it

  • Appointment with Dr. C in the Center for Advanced Medicine (CAM) building at Big Barnes
Dr. C started by confirming all the things that Dr. T had told me over the phone about moving forward with liver wedge resections. He explained that it will not be a laporascopic surgery, based on the location of the tumors in my liver, and the recovery might be painful when I cough... or breathe (as my ribs will have to be pulled out of the way during the surgery).  The good news is that the liver regenerates so I will hopefully grow back a full and healthy non-tumory liver.

Survival statistics for metastatic colon cancer (stage IV) are much better when the cancer has only traveled to the liver and can all be surgically removed. Now I know mine did also go to my ovaries, but that cancer was also surgically removed. And I know I'm not a statistic, but I think it is good to be informed.

I had a big sheet of questions for Dr. C and I like how he smiled and basically said "okay, bring it" when I told him that I had been doing some research on-line in advance of this appointment, but then he carefully answered every question and concern thoughtfully. Dr. C thinks he can get it all. And I'm a believer!

Monday, April 4, 2016